Conference moira::parenting

    Call American Diabetes Association 1-800-ADA-DISC
    
    What type of info you looking for???
    steve

    Just some general info.  Is it hereditary?  What does it take to get
    a child stablized?  Support groups for family?   That type of thing.
    
    Sarah

    If you have a child, or relative, that recently have been diagnosed
    with diabetes a few hints:
    
    1. Insist on seeing a Diabetes specialist.  They have the support
    systems in place to help you and your child.  GP's just aren't
    up to speed on all the new styles of treatment.  
    
    2. Join the ADA they provide a wealth of information to families with
    diabetes.  Joslin Diabetes Foundation (JDF) is also good, however it is
    more research orientated.
    
    Is it hereditary?  There is some belief that it is, but other theories
    are more environmental.  
    
    What does it take to get a child stabilized?  Not an easy question, in
    simple terms its proper diet, the right amount of insulin, and right
    amount of exercise.  If a blood monitor is not being used, this is
    now considered mandatory for diabetes control. 
    
    Support groups:  ADA, in addition local hospitals usually have support
    groups.  JDF has a great kids camp, Clara Barton camp.  
    
    It is difficult to answer your questions, they are just to vague?  It
    would help to state where you are, who is being impacted, what types
    of treatment is being received, etc.
    
    steve

    They have a diabetes notes file that you have to contact a specific
    person to get access to it.  I am a member of that note and will get
    you the person's name and the name of the note and post it here
    sometime today.
    
    This note will help answer alot of your questions and they will point
    you in the right direction on how to control your childs diet, etc. 
    You should also see an Endocronologist(sp) they are doctors who deal
    with diabeties.
    
    
    Liz
    

    I became a diabetic at the age of 6 years old.  I am now 26. 
    If you would like some info, you could write me off-line and I would 
    be happy to answer any questions you may have.
    
    Gail
    

    At about age three my brother was diagnosed as borderline diabetic. We 
    had the privilege of being treated by Eliot Joslin himself who
    recommended diet and exercise. My brother's case really was borderline;
    he never took medicine. He's now 40 and we wait to see if there will be
    adult onset.
    
    Adult diabetes with all its complications happens to run on both sides
    of my family. What I have learned and what I want to pass on is that
    diabetes is a disease you can live with. It requires discipline and can
    be difficult; I don't wish it on anyone but we simply aren't afraid of
    it now.

    My nephew was diagnosed with JD two years ago.  He is now 9.  He is the
    greatest kid, doing exactly what he is told, eating everything that he
    should and nothing that he shouldn't, but it is still not easy. He's a
    growing boy and his sugar can go from 50 to 500 in a matter of hours. My
    sister and her husband bear the brunt of it.  Ryan must have his sugar
    tested 6 times a day and he currently receives two shots each day. 
    This may change in the near future as his sugar is still uncontrollable
    and he might have to go to 3 shots a day - something that would be a
    last resort because even though it would probably solve the problem, it
    would be permanent.  Three shots a day is a lot for anyone to handle. 
    
    Their doctor is at Joslin - as long as my brother-in-law's Union
    doesn't change insurance policies - they get a lot of support from
    Joslin.  The whole family (they also have a daughter who is 12) went to
    a camp this summer for a long weekend.  It was very therapeutic for all
    of them.  And they will plan to send Ryan to summer camp maybe next
    year - which is NOT cheap.
    
    My sister and her family will survive this - it has made them a
    stronger.  Although I, too, worry about Ryan's future, I find myself
    more worried about my sister - and I find that she needs my support
    more than ever.
    
    

    Here is the information on how to become a member of the Diabetes notes
    file.
    
    Send mail to the moderator: SUE YURYAN @ MAY28::YURYAN.  Explain your
    situation to her and she will contact you and registar you as a member
    of the note.
    
    
    My mom was a diabetic for many years and my oldest brother just found
    out in January of this year that he was a diabetic.
    
    Good luck 
    
    Liz

    My 4.5 year old son was just diagnosed with Type I Diabetes.  We spent
    4 days at the Dartmouth Hitchcock Medical Center in Lebanon, NH
    (beautiful place!).  I tried to contact Sue Yuryan in the previous
    reply but can't find her on ELF and the mail won't go through.  Does
    anyone know if the Diabetes file still exists?  Anyone out there with
    very young children with diabetes?
    
    Tim (my son) is handling things very well.  Better than his parents! 
    He has no problem with his shots (two a day) and wants to learn how to
    do his own "Finger-pricks" (blood tests for sugar).  Major routine
    change in the family though!
    
    Thanks for any info,
    
    Linda NIckerson
    MKOTS3::NICKERSON

Try DRIVME::Fortier for membership in the Diabetes notesfile.

    
    The Diabetes notes file isn't around anymore.  The contact person 
    is apparently gone.  (no longer on elf)  
    
    I probably can answer any specific questions the base noter has or 
    lend support.  I have had diabetes for 20 years and been through 
    many of the hurdles.  Best of luck to you and your son, the road 
    will be tough at times. I have known many diabetics and their 
    parents and have heard numerous times that the younger age group 
    adapts better then the adults and parents do.  It just becomes a 
    way of life for them. They are also much more flexiable with treating
    diabetes today. Joslin Diabetes Center in Boston is excellent and 
    can give you lots of references/pointers.  
    
    Not to make light of your situation just to point out some of the 
    positives. Feel free to contact me if you have any questions.  
    
    lori 
    
    

As far as I can tell, Paul Fortier is still here.  POOLCU::DIABETES exists,
but since I'm not a member, I have no idea if it's active.

    John is still in my group, last time I looked!  8^)
    
    I have sent Linda the info on how to contact him..... she should be all
    set.  For those of you who need to get a membership contact John at:
    
    SPESHR::FORTIER
    
    AND, the notesfile is still around, just not real active.
    
    M-L (a member)

    Thanks to all who replied.  John has set me up in the DIABETES
    notesfile so I'll be checking things out over there - you other noters
    set up over there make sure to check it out for me!!
    
    Linda